Dermatitis Herpetiformis Leaves Me A Little Rough Around The Edges

pineapple
This pineapple may be a little rough around the edges, but it’s also totally cute! In fact, it was the best find of my grocery shopping trip this week. Since then, every time I get dressed and feel the roughness on the back of my elbows I like to think of this pineapple. Why? Well, I have dermatitis herpetiformis (DH) – a skin manifestation of celiac disease, which sometimes leaves me rough around the edges. Thinking of this adorable pineapple reminds me that this annoying and ugly rash doesn’t prevent me from being the highlight of a meeting, the life of the party, a creative soul, a compassionate person, a smart cookie, or even a cutie pie.

elbow
DH on my elbow today.

I’m not saying I love having DH, but I am grateful that my long-term gluten-free lifestyle means that when it appears now it barely itches. In fact, now I often don’t notice the rash on my elbows until I run my hand across it when applying lotion. This wasn’t even close to true in the days when I consumed gluten. At that point, my rash was so unbearably itchy it required intense concentration at all times to keep from clawing at it. Sometimes I still couldn’t resist. It was driving me crazy!

I mean, it was seriously distracting. I had inflammation, pain, weakness, severe gastrointestinal symptoms, and my hair was falling out, yet the thing that drove me to the doctor was that itch. If you’ve had it, you understand why. If you haven’t there’s no way to express how pervasive it is. In spite of the fact that my case was a classic presentation, my doctor never considered celiac disease as a possible diagnosis. He prescribed an antihistamine and sent me on my way.

It was a long road from that point to one where I began healing. Looking back, I’d say the symptoms had been gradually increasing for at least 10 years. I know that the length of time it takes in the US to get a celiac diagnosis has dropped from 11 years to 4 years, but 4 years is a very long time to spend with a sixfold greater likelihood of death. Four years is a long time to deal with unnecessary daily pain, weakness, malaise, diarrhea, or the itchiest rash in the universe!

It’s become quite popular to debunk the benefits of a gluten-free diet for anyone other than the diagnosed celiac. While that might seem prudent if more than 17% of the 3,000,000 estimated celiacs in the US had been diagnosed, it is a bit presumptive at this point in history and it discourages people from trusting what their body is telling them. While I know that some of the self proclaimed gluten-free community is ill informed (as Jimmy Fallon discovered: https://www.youtube.com/watch?v=AdJFE1sp4Fw), perpetually whiny, or over promotes itself, it’s worth pausing a moment before discouraging or challenging someone’s dietary choices. It could be that they feel on the inside like I felt on the outside when this rash, triggered by the iodine in radioactive dye used for a CT scan, covered 2/3 of my body.
DHSM

As you can see, I was more than a little rough around the edges. If someone is feeling like that on the inside, I just want them to feel better, don’t you?

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Resources
http://www.celiac.com/articles/22028/1/Increased-Mortality-Rates-for-Celiacs/Page1.html

http://www.cureceliacdisease.org/wp-content/uploads/2014/06/CeliacDiseaseFactsAndFigures0614.pdf

http://sciencelife.uchospitals.edu/2014/02/05/dr-faq-stefano-guandalini-on-the-rise-of-celiac-disease/

Gluten-Free Summer Freeze-Out Diet

Enjoy a gluten-free summer freeze-out diet! My list of preferred summer food includes all things really, really cold! Perhaps it’s because my kitchen and favorite sitting room hold heat late into the evening, or perhaps it’s because it’s, well, really hot outside. At least once per summer I resolve to eat nothing but ice cream until the leaves turn orange.

Today, I’ve been making a list of all the things I want to include in my Specialized Gluten-Free Summer Freeze-Out Diet. Here’s what I’ve come up with so far:

Lepops Gourmet Iced Lollies
These delicious frozen pops are handmade using locally grown produce and herbs. If you buy several, they throw in an insulated bag. My grand dog Stewart likes many of the flavors including Cucumber Jalapeño.

red mangoRed Mango® Frozen Yogurt
What I love about Red Mango is that the frozen yogurt retains the tanginess of regular yogurt instead of tasting just like ice cream. I don’t really have a favorite flavor here. I try whatever sounds good. My next choice will be the Taro flavor.

gelatoTalenti® Gelato
I especially like the Sea Salt Caramel flavor with its chewy chunks of chocolate I’m totally curious about the Black Cherry and Black Raspberry & Chocolate flavors too, but they never seem to be available at my local store.

cherrygarciaBen & Jerry’s Ice Cream
The names may be better than the ice cream, but Cherry Garcia® will pass in a pinch.

bbtattooBlue Bell Ice Cream
We can only hope Blue Bell gets its problems worked out. I like their flavors and the party they hosted at the facility in Broken Arrow.

I don’t much like sweet tea, but I’m still intrigued by Chef Andrea Litvin’s recipe for Sweet Tea Granita as published in Garden & Gun: http://gardenandgun.com/article/anatomy-classic-sweet-tea-granita/page/0/1. I think it’s the ice in the photo that keeps luring me in.

Ice cold anything is appealing to me when the mercury tops 100. Later this week I’m going to a fundraiser featuring ice cream cocktails that combine locally distilled spirits with locally made ice cream. It sounds like the perfect way to enjoy giving back!

I may not be totally serious about eating nothing but ice cream this summer, but I love the idea! Have anything you’d like for me to add to my list? Let me know and I’ll try it out.

http://www.lepops.com/

http://www.redmangousa.com/

http://www.talentigelato.com/


Disclosure of Material Connection: I have not received any compensation for writing this post. I have no material connection to the brands, products, or services that I have mentioned. I am disclosing this in accordance with the Federal Trade Commission’s 16 CFR, Part 255: “Guides Concerning the Use of Endorsements and Testimonials in Advertising.”

It’s About to be Hot, Hot, Hot in the kitchen!

Before you know it, the spring storms will be through delivering this year’s unusually strong punch and it will just be hot, hot, hot in the kitchen. In my house in summer, I feel like I’m baking before I even start cooking!
tree
A couple of days ago I lost my shade tree, so this year may prove even more brutal. In anticipation of this possibility, I’ve been playing with some simple microwave recipes that will keep me out of the heat as much as possible.

This Left Over French Fry Breakfast Casserole takes less than 10 minutes in the microwave AND it gives me another reason not to finish all the fries on my plate. I’m calling it a breakfast casserole because it contains ham and eggs, but it is hearty enough to serve for dinner.
breakfast casserole
Left Over French Fry Breakfast Casserole
Makes 4 – 6 Servings

Olive oil spray
1 8 oz package diced ham
1/2 cup Creole mix fresh chopped green peppers, herbs, and onions
1 1/2 – 2 cups left over french fries, cubed
4 eggs
1 tbsp water
Sprinkle of salt
Sprinkle of pepper
1/2 cup shredded sharp Cheddar cheese
1/2 cup shredded Mozzarella cheese

Spray a pie pan with olive oil spray. Place ham, creole mix, and fries in pan. Stir together. Cover and microwave for 3 minutes. While mixture is in microwave, break eggs into small bowl, add water, and stir briskly with fork to mix yolks and whites until uniform. Sprinkle eggs with salt and pepper.

Remove mixture from microwave. Pour eggs over mixture, and stir. Once mixed, cover and microwave for 3 minutes. Remove and stir. Microwave for an additional 2 minutes.

Remove pan from microwave. Stir in cheese and press top with back of spoon to make the top level. Let stand for 1 minute. Serve hot.

I make this using 96% fat free ham and ingredients that contain no gluten. It can be easily adapted to fit your eating plan. Later today, I’m going to try a version using left over gyro and Feta cheese in place of the ham, Cheddar, and Mozzarella.

Have another version you’d like for me to try? Submit it below and I’ll let you know how it turns out!

Should My Whole Household be Gluten-Free, Wheat-Free, Egg-Free, Dairy-Free, Nut-Free, Shellfish-Free, Soy-Free? Ten Important Considerations

pantry mixI’ve been visiting my son in LA and the question keeps coming up, “Should my whole household be gluten-free?” I think it first arose with the smell of chocolate chip cookies coming from the kitchen. They were for a client and contained the traditional wheat prevalent ingredients.

Of course the aroma piqued our desire for gluten-free chocolate chip cookies as well. It seemed like a good idea to bake both while the oven was hot, but the kitchen hadn’t been fully cleaned from prepping the traditional dough. Was it a good idea to mix up the gluten-free cookies yet?

This question led to a discussion of the labels on the pimento cheese containers and the two containers of yogurt (one used for traditional baking) in the fridge and the stash of teeny tiny jellies in the cupboard which then led to a debate on the possible merits of eliminating all gluten from the household.
contaminated
My family has members who are celiac, gluten-intolerant, allergic to shrimp, and able to eat absolutely anything. If your family is like mine, you’re familiar with the balancing act required to keep the affected parties away from harm while keeping the rest of the family satisfied.

Of course there’s no one size fits all solution for determining what works best, but here are a few things to keep in mind when discussing the options:

1)How severe is the allergy or intolerance?

The last time I ate shrimp, my throat swelled shut and I sounded like I had whooping cough when I tried to breathe. Households with peanut allergies may have experienced the horrible helpless feeling that comes along with severe anaphylaxis. Reactions of this level or that are obviously progressively worse with each exposure mean a food allergen will be eliminated from my house.

With gluten, the response to a tiny amount can vary widely. While I would not cook a gluten-free grilled cheese in the same skillet you just used for your regular sandwich without washing it in between, I have no hesitation about using the same skillet once it’s washed. I’ve never had a problem from a burger cooked on a grill where they heat regular buns. There have been times I’ve inadvertently eaten fries that were fried in the same oil as onion rings without suffering any ill effects. But that’s me and those were unique events. Your experience may be very different.

The severity of response to a particular allergen may require some patient observation. Once my gut had healed on the Specific Carbohydrate Diet, I returned to a gluten-free regimen only to discover that I can’t tolerate very much corn. It seems that some of my previously assumed gluten reactions were actually corn related.

2)How is an allergen or irritant stored and who has access to it?

My household has a different rule for medications. Since I have no allergic children or mentally impaired relatives living with me, I don’t mind placing a bottle of aspirin or cough syrup with codeine in the medicine cabinet even though ingesting a single aspirin will have me covered in hives in less than 30 minutes. I simply avoid opening the bottles and consuming the meds.

3)How many people in the household are detrimentally affected by the substance in question?

In the beginning of my gluten-free days, I was one-third of the household and the only one who had to follow the regimen. In other words, I was outnumbered. While I was careful to clean pots, pans, utensils, and surfaces in between, I continued to cook regular pasta, pizza, and dinner rolls for the rest of the family. (A gluten molecule is too large to pass through the skin, so any risk from cleaning up surfaces was easily avoided.) Another option would have been to designate certain pots and pans gluten-free. And, of course there were many more prohibitive options, but it seemed extreme to me to restrict 2/3 of the household as long as I was not suffering any detrimental effects.
GFMix
4)What are the ages and temperaments of the parties at risk?

Young children cannot be expected to read labels on packages or to consistently make good choices. Having a system in place that minimizes their risk and helps them learn at the same time is ideal. Children who tend to follow the rules may respond well to having only gluten-free options in the refrigerator door and a “special” shelf in the pantry from which they are allowed to make their own choices.

Children who are more prone to challenge or mischief may mean a need to eliminate all gluten from the household to minimize your risk as well as theirs. There was some rethinking of my system when my kids decided celiac was a “mental disorder”, meaning it was all in my head, and set out to develop secret tests to see if I would get sick. Funny how all that changed when one of them had to go gluten-free. Ahhhhh, irony…and paybacks! If you have enough patience, these things often work themselves out.

5)What is the cooking environment like?
Is a ceiling fan always running in the kitchen? Is there often a breeze blowing through the open windows or door when you bake? Strong air currents in the kitchen will carry flour particles a long way potentially causing a gluten cross contact problem. You may be careful to clean up the countertop where you’re working, but flour can ride the airwaves across the room to land on gluten-free muffins cooling on another counter.

I always have a cutting board sitting on the peninsula – usually the same one. Are you in the habit of using a single cutting board for everything? Is that cutting board made of a permeable material? How often does it get a thorough cleaning and will you remember to clean it each time it comes in contact with an allergen? All of these things must be considered when determining whether your kitchen environment is conducive to safely using allergens.

6)How many different people in the household cook?

If cooking is a shared duty, it will be necessary to assess the knowledge level and commitment to cooperation of each cook before making a plan.

7)What is your style of cooking or serving food?

Ben and I cook using primarily fresh fruit, vegetables, meat, poultry, and individual baking ingredients. James and my sister use more premixed seasoning packets, boxed meal extenders, and batter mixes. You may purchase mostly precooked, frozen or packaged foods. Some folks put the food in serving bowls, others fill plates in the kitchen, and still others put pots on the table and use a single spoon to dish out the food. You may remove jelly from the jar to your plate with a spoon that never touches your biscuit. We’re in the habit of sticking a knife in the jelly jar to drive my mom crazy. If you do that and smear a piece of regular toast with jelly then stick the knife back in the jelly jar, you’re trailing pieces of toast into the container and contaminating it with gluten.

Your family’s style of cooking and eating will present a unique set of considerations: Are you able to vary the pancake recipe if your child is allergic to eggs and milk? Do you stick your measuring cup in the wheat flour container and then in the sugar when you’re baking? If so, are you willing to break that habit or do you prefer to keep two different containers of sugar so that your gluten-free cupcakes don’t contain contaminated sugar? Are you in the habit of reading labels when pulling something out of the pantry or refrigerator to make sure it doesn’t contain any problem ingredient or do you prefer to be able to use anything in the house without having to think about it?

8)How much space do you have and how organized is your family?

Some families have elaborate storage systems and ample pantry space in which to easily categorize. In my kitchen with its narrow, deep pantry, reused plastic containers are stacked on plastic pull-out organizer drawers from The Container Store. It’s not unusual to see trail of white rice flour on the top of the sorghum flour container. Adding a container of wheat flour to this collection would be ill advised even if it were clearly labeled. In a different environment, a labeling system would be sufficient for preventing cross contact.
cans
9)How much waste will be created by having a dual system?

The discussions that prompted this post have often centered on how much food is getting thrown away. If everything were gluten-free in my son’s house, there would be less waste. Of course this means that to get a consensus for such an arrangement, there must be a high standard for the taste and texture of the gluten-free food so that it is pleasing to everyone. Households like this are one of the reasons Cooking2Thrive is committed to developing gluten-free recipes that go beyond providing an acceptable substitute in order to please the discerning gluten-eating palate.

10)Is it more costly to remove all allergens and irritants from the household or to purchase some of both?

Even with the finances, there’s no specific formula for deciding which will cost more. The answer will vary depending on how many packaged foods you buy, how many different allergies or sensitivities you must accommodate, and whether or not you end up regularly throwing away food. The more data you collect and the more accurate your observations, the greater your ability to determine this outcome.

There’s rarely an easy answer to the question, “Should my whole household be gluten-free, wheat-free, egg-free, dairy-free, nut-free, shellfish-free, soy-free?”, but exploring the options will make you more aware of your habits and the concerns of other family members. That is valuable information upon which to build. My family has found that developing an acceptable plan can reduce stress in the household and make it easier to support each other’s health.

And that would be a good thing for most families…problem is, we LIKE to argue the relative merits of pretty much anything. Of course, you can help us out. Start a whole new discussion by telling us how things work in your household.

Disclosure of Material Connection: I have not received any compensation for writing this post. I have no material connection to the brands, products, or services that I have mentioned. I am disclosing this in accordance with the Federal Trade Commission’s 16 CFR, Part 255: “Guides Concerning the Use of Endorsements and Testimonials in Advertising.”